Purpose 
The purpose of the Patient and Family Advisory Council (PFAC) is to help ensure that HRBA focuses its efforts on activities that are most likely to maximally benefit patients and families. To do this, the PFAC shall provide ongoing strategic advice to HRBA on issues and priorities from their unique perspective. The PFAC is encouraged to bring issues to the attention of HRBA that it believes are important and/or urgent, regardless of whether they are currently being considered.

Some Key Questions for the PFAC

1. How can HRBA advocate more effectively for the use of personal health records (PHRs) and health record banks (HRBs) by consumers, patients, and families?
2. What questions concern consumers and patients about their personal healthcare data?
3. What features and functions are consumers, patients, and families looking for in an application to manage their healthcare data?
4. What has been the experience of consumers and patients in wanting, needing, gathering, sharing, and using their personal healthcare data?
5. How could health record banks make it easier for consumers, patients, and families to interact with the healthcare system?
6. What regulatory policy changes would consumers and patients like to see with respect to getting and using their personal healthcare data?
7. How can HRBA interest consumers and patients in health record banks and personal health records?
8. What consumer groups should HRBA reach out to and what should HRBA’s message be to those groups? 
9. What PHR and HRB business models would be attractive to consumers and patients to pay for the service of collecting and managing their healthcare data?
10. What computer-based applications or mobile apps do consumers, patients, and families envision that could take advantage of their healthcare-related data?
11. What barriers and challenges should HRBA be aware of in the widespread adoption of personal health records and health record banks?